Prevalência e impacto psicosocial dos sintomas do trato urinário baixo em pacientes com distrofia muscular de Duchenne

Holanda - pacientes com Duchenne relatam sintomas do trato urinário em suas consultas para fisioterapia. Os autores decidiram enviar um cartão postal com um questionário sobre sintomas urinários De 199 pacientes com a doença, 170 (85%) apresentam sintomas urinários. Geralmente gotejamento pós-micional, esforço e sensação de incompleto esvaziamento da bexiga são os mais frequentes. 42% dos pacientes consideram estes sintomas como um problema e e 29% consideram que ele piora a qualidade de vida.

O resumo em inglês pode ser lido abaixo:

(Neuromuscular Disorders 19 (2009) 754–758) Prevalence and psychosocial impact of lower urinary tract symptoms in patients with Duchenne muscular dystrophy

Evaline van Wijk, Bert J. Messelink, Lily Heijnen, Imelda J.M. de Groot - The Netherlands

Patients with Duchenne muscular dystrophy (DMD) frequently report lower urinary tract symptoms at the outpatient rehabilitation clinic. The purpose of this study was to determine the prevalence of lower urinary tract symptoms in the Dutch male DMD population and their effect on quality of life. A postal questionnaire was sent to members of Dutch DMD patient organisations. 199 male patients with con-.rmed DMD and over the age of 3 years were included. 170/199 (85%) patients reported one or more lower urinary tract symptoms. Generally, post micturition dribble, straining and feeling of incomplete emptying were most frequently mentioned. 42% of patients (range 18–76%) experienced the symptoms as a problem. In 49/170 (29%) patients, it reduced quality of life. In conclusion, lower urinary tract symptoms in DMD patients are under reported and under diagnosed. However, the vast majority of male DMD patients with symptoms experience them as a problem, often reducing quality of life.

Fonte: http://distrofiamuscular.net/noticias.htm